Friday, December 6, 2013

A Trichy Timeline

So.  The big secret, or not-so-secret, is that the lovely hair you see here:


Is NOT my own.  It is a hair piece.

My real hair is quite short.  Here I am styled in a faux hawk while dying my "shorties" as I call them:


So, how does one get to this point?  It only took about two years for every hair on my head to be pulled out.  This sounds crazy to some people, but trichsters have a strange thought process and relationship with our hair.  Kind of an emotional immunity, or else the depression over what we have "done to ourselves" would take over, which it oftentimes does.

Let me start with a sort of time line of how things started for me.  Some background.

I can remember being very little and focusing on picking and pulling.  As a toddler I would pick the paint bubbles off of the wall.  I was always a scab picker and can remember picking at my moles as a young child.  This is related to Skin Picking Disorder (SPD), which goes hand in hand with trich with a lot of people.

My first memory of pulling is when I was about 10 or 11 years old.  I remember pulling my eyelashes.  This is a typical age onset for the behaviors.  They typically show up (in girls) around the age of menarche (first menstrual cycle) or a couple years prior.  I have memories of laying in bed at night and pulling a little and holding the lashes I would get up to the light shining in from the hallway.  It was never noticable and I never pulled to the point of having bald patches on my lids.

Next very specific memory I have is sitting in my room at about the age of 14 and pulling at the little hairs on my hands and fingers.  I also remember sitting in class one day in high school and brushing at my arm and noticing one hair sticking up.  So I pulled at it.  I didn't have to really pull it out; it seemed like it was loose or "ready to be pulled".  This started the arm hair pulling that would continue through high school and college and beyond.  I would continue to pull at my eyebrows and eyelashes.  I remember a day sitting in the basement and pulling at my lashes and getting, like, 5 or more in one go.  I freaked out a bit and rushed to the bathroom to see the damage and there was a little bald patch in my lashes.  I would cover it up with makeup and I doubt anyone noticed.

I do have memories of pulling at my scalp hair, too, but it was never anything damaging.  If a hair was out of place I would pull it.  If a hair was particularly thick or dark (I was blonde then) I would pull it.  No big deal.

There were times in college and after that I would pull major chunks of my eyelashes out, but would always cover up the damage with mascara and eyeliner as best I could.

The first time I pulled out all of my lashes was 2009.  I just kept pulling and pulling.  As I would pull at them, my eyes would start to sting and itch a little, which made me want to pull more.  It also seems that the more I pull the easier it is for them to come out.  Then one side would be thinned out more than the other, so I would go after the next side.  The result was a few little lashes left behind.  So I took the tweezers to them because I thought the stragglers made me look ridiculous.  I was pretty freaked out.  Top and bottom lashes were gone.  They grew back in time and as they did I just wore eyeliner everyday.  I have pulled out all of the top lashes (or at least most) a few times since then.  I know I had been pulling from my scalp more because I remember my cowlick hairs being short and sticking out of my hair at this time.  My first memory of noticing that was 2008 when I lived in Ohio.

Here is a photo where I have little to no lashes:


I also have memories of pulling out hairs on my shoulders in middle school, and also belly/hip hair after I had my daughter.

I had a major episode of skin picking when I broke out is some really awful, mystery rash.  This rash was in addition to an onslaught of other mystery medical issues (still not resolved) which had my doctor thinking I may have had Lupus.


I had also recently started taking medication for my ADHD, which could have been a contributing factor, except I went off of the medication in the off chance it was some freaky allergic reaction.  My arms were COVERED.  It itched intensely.  I couldn't leave it alone.  Speaking of alone, I had a lot of alone time at work and definitely picked too much there, as well.

Dude.  Ew.  This is when it wasn't even that bad....I do still have scars from it, though.

So, what about the big issue?  THE HAIR!  On my head, that is.

I used to have A LOT, and would constantly get complimented on it.  Long, thick, awesome hair.


(Before I learned about white balance.)

Ok.  So here is when it all started going downhill

November/December 2011.  I had started noticing more of these really dark, really squiggly hairs and had started pulling them out.  Things got really crazy and I think there were several factors:
1.) I was experiencing a major depressive episode partially due to a recent break-up, which was being exacerbated by my seasonal affective disorder (SAD), along with my other run-of-the-mill depression and anxiety.
2.) I had started taking medication regularly for ADHD, which can induce and/or worsen tic like disorders (like trich!!)  But, it also helped me focus on other things besides pulling.  There will be another post about this complicated issue sometime.

I had been pulling and had some short guys sticking up here and there, but nothing major.

Then I got highlights.


This turned out to be a bad idea, though I didn't realize it at the time.  This caused more of my hair to be "different" and I ended up pulling out the blonde highlights almost entirely, in addition to those thick, black weird ones.

At some point this would deteriorate and I would spend HOURS in front of the mirror (usually at bedtime) searching for and pulling out the hair.  I would look down and there would be lovely little piles on the floor.

I started noticing the feeling of stubble in the spring of  2012 when I dyed it red at the salon and the stylist commented on all of the "breakage" I had.

Looking a little thinned out here

I'm not sure if I was fortunate enough to start out with lots of hair and thick hair, or if it was bad because I "got away with" pulling for almost a year before it became super noticeable.

My ponytails were getting smaller and smaller and thinner, so one night I freaked out and cut it all off, hoping that if it was short, I wouldn't "see" the weird hairs and would just leave it alone.


It worked, but like everything else, only for an all too short amount of time.  I couldn't put it into a ponytail anymore and started going after the top/crown more.

Here is a photo where you can kind of see bald patches forming and shorter/thinner hair on the top



At some pivotal point, it got so bad that a half pony or anything would no longer cover it up, and so I bought a hat and would wear it often


And then the bandannas.  Which helped me leave it alone for a short bit, but then may have also, at the same time, made the pulling worse, since I could cover it up easily.

 

It got so bad so fast.  It was a total snowball effect.

Fortunately, I found a stylist who could help.  I had pulled almost every single hair off of my head and had to do something.  So,  I got a hair piece put on by the lovely Cassandra Gould at Love and Hair Peace!!!

These "Before" pictures are still extremely difficult to look at, but worth sharing.




After:



So.  The hair piece is glued on and not only looks incredibly real, it creates a physical barrier so that you cannot pull the hair that is covered up.  Unfortunately, over the next couple of months I ended up pulling all of the hair that was long and in the back and not covered up by the piece.  The hair pieces typically stay on for 6-8 weeks.

If I had left my hair alone since then, I would have a full head of hair by now, and that is difficult to come to terms with.  It is growing, just much slower than it would be if I could leave it alone.  Sometimes I resent the piece, but am very glad to have it.

So, here I am, and that is most of the story.  I have even been brave and gone out in public with my short hair a few times.

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Thursday, September 19, 2013

Why I decided to go public

So, on August 12, I decided to go "public" and announce my trich to "the world" and posted a link to this blog on Facebook.  I am so glad I did.  I got 100% positive feedback, and quite a few people "came out" to me themselves or were able to pass the information on to someone they know with the disorder.

Here is an example of an email that I received that pretty much sums up why I want to raise awareness for this disorder:

Hi Marnie, I just wanted to say I came across your post last week and wanted to tell you I have trichotillomania too. I have had it since I was 10 years old and have some stories to share. I pulled out so much hair when I was 11 that I had a big bald spot in middle school and got made fun of for it. I was also shamed by some family members over it, as though I had control over it. I've never talked about it with anyone, not even [my husband]. He probably doesn't even realize I have that disorder, probably thinks I have a nervous habit but it's more than that. I still have it, but have been able to manage it better since I now know what my "triggers" are. You're brave for telling the world, and thank you for that.

This story is so familiar and one I heard many times when I went to the TLC conference this past spring (more on that to come).




I'm going to try to link to some sort of resource at the end of every blog I do, whether it be another blog, a website, a treatment center, a trich friendly stylist, etc...


Today's pick is a YouTube video that has been watched and shared a million times over. This girl is known as beckie0 on the internet and is pretty much THE trich celebrity. She made the video when she was a teenager a few years ago and it was her "coming out" video, but it pretty much sums up the disorder, even with a bit of humor in there. This video made me really want to start being more public about the disorder and become more of an advocate for awareness and change.


I highly recommend following her videos and her blog


http://youtu.be/CiBIXMBEqgE












Friday, April 19, 2013

A Different Kind of 'Coming Out'

Ok.

I have trichotillomania.

There.  I said it.


Trichotillomania as defined by TLC: The Trichotillomania Learning Center:

Trichotillomania (trick-o-til-o-MAY-nee-ah) is a disorder that causes people to pull out the hair from their scalp, eyelashes, eyebrows, pubic area, underarms, beard, chest, legs or other parts of the body, resulting in noticeable bald patches. Hair pulling varies greatly in its severity, location on the body, and response to treatment. For some people, at some times, trichotillomania is mild and can be quelled with a bit of extra awareness and concentration. For others, at times the urge may be so strong that it makes thinking of anything else nearly impossible.

Trichotillomania (also referred to as TTM or "trich") is currently defined as an impulse control disorder but there are still questions about how it should be classified. It may seem to resemble a habit, an addiction, a tic disorder or obsessive-compulsive disorder. Most recently, it is being conceptualized as part of a family of "body-focused repetitive behaviors" (BFRBs) along with skin picking and nail biting.


So, there you have it.

I wanted to start a blog to reach out to others suffering from this and to help educate my family, friends, and anyone willing to read my ramblings!  Trich and associated BFRBs are much more prevalent than you would think.  Most people have at least a body focused "habit" I would say.  I constantly see people messing with their hair (twisting, running fingers through, checking and breaking split ends), scratching at their scalps, picking at acne/scabs, biting their nails, and/or messing with their cuticles.

Sound like anything you do?

I am keeping this first post short, and will go into greater detail in following posts.  I want to include information, opinions, theories, and document the struggles I face living with this and trying to find treatment options.

Just to note: people with these disorders have a high level of self consciousness, shame, guilt, and extreme embarassment.  If you think you know someone who has this, please be kind, if you don't know what to say, it is best to not say anything at all.

For more information, I urge you to visit the TLC website
Trichotillomania Learning Center  

-Marnie